A Day without meds, is like trying to swim, in a pool of pudding.

I miscalculated, and we ran out of JJ's meds today. We do not have a car and rely on family to get us places. He is currently on Intunive, and it help him so much with the anxiety and getting to sleep. When he does not have his meds, we are normally awake till 4 in the morning. He is so hard to focus. He goes into his spells where he doesn't seem to hear me. I have to physically take his hand, and even then,, he winds up on the ground in a fit.


So you can imagine my surprise today when I gave him "The look", and he registered. There are words we do not allow in our house. Stupid, Shut up, poop, dookie, etc... Well, he looked at a friend and called him a name that used the word poopy. I looked over to see him immediately look up at me. I was already ecstatic that he knew it was wrong. I then gave him "The Look". Then you could hear him say "Ooooooh!" as though he had this epiphany about the look I had given him. Like "Now that makes sense! All those looks were for something naughty I did!" I was laughing hysterically inside. It was so great to know that my look will do it's job! Now, If I could just get him to clean the play room!


Today tested my patience. Big time. I was proud though. The weather was nice and I sent them outside to play.  They took off up and down the street with their friends, JJ played in the dirt as always. Lining up his cars on his "Dirt road" that he makes every day, only for me to sweep it up each night. I managed to get him in the shower tonight. As for dinner... looks like cheez its and some sprout TV!


~Amy~

A little diddy, bout Lei and JJ.

Let me start by telling you a bit about myself. I am 29 and married, with 2 beautiful children. My son JJ is 4, almost 5 and was diagnosed with HF AS. He is currently medicated for high anxiety and will be going on this week for a round of testing to see where we are and how we fall on the spectrum. We received this diagnosis back in August. 


My daughter Lei is 3. She is as NT as they come. She is what most of you call, baby 101. Textbook. She is all girl and the sweetest thing you will ever meet. Then you get to know her. She NEVER shuts up! She sings in the shower. She plays pretend with her dolls. She is such a cutie!


We realized that JJ may have some issues when he was a bit younger. He was always an anxious child, and hard to understand. He would intentionally hurt animals, but couldn't explain animals. He would hit or pull their tails. He had a VERY HARD time expressing himself to anyone. I didn't really think to see anyone until my mom brought up that something "wasn't quite right". She couldn't explain it. 


We saw a therapist who immediately realized what was going on. They referred us to Silver Child Development Center. From that point on, I read books, surfed the internet and talked with people who had the same experiences. That brought me here.


~Amy~

Just the beginning.

I am here to share my experiences. My triumphs, and my defeats. My advice, my support and my shoulder. Life can be hard, and it helps to know that there are other people out there that do understand and are willing to listen. It is not an easy journey, and it is exhausting, but is also the most rewarding and amazing thing you will ever do in your life. It is the funny, the success, the smiles, the accomplishments (no matter how small to the rest of the world) that we share with one another that push us through. They remind us that it does have it's good moments. 


The struggle that comes with raising a special needs child is one of the toughest. We need each other. As the parents, grandparents, brothers, sisters, aunts and uncles. We need to support each other.


I want to blog here daily about my son. His awesomness and life with him. :) I would love to hear your experiences as well. You can also connect with me via FB. Button up there on the left hand side!




~Amy~